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Thank you for visiting our blog. Please read my daughter, Grace Marie's, journey to her full potential.


Tuesday, July 14, 2009

Monday - Oh, what a day!

Grace did incredibly well at therapy today. She increased her stability on the b~ ball and then walked better and longer on the stones. Still doing the balance beam well and the hand movements, too.

However, the excitement of therapy was only the beginning. Now let me preface my story first with the note that many people will not get the magnitude of her accomplishment's today. But her Mommy sure does. So Grace wanted something to drink and I told her that her drink was in the refrigerator and that wouldn't it be great if she could go in the fridge when she wanted to! So I showed her ONCE how to stand and use both hands on either door to push and pull at the same time. At first she tried but it was not budging and she said, "I can't do it", I told her yes you can keep pulling and it opened!!!! This is the first time EVER that she has been able to do something physical without numerous amounts of instruction, etc. I jumped for joy and of course she was very excited too.

Then it was tv time. I let her watch Toy Story 2 and for the first time ever she created conversations with me about the movie telling me what the characters were feeling and why. My jaw just dropped open. She was not in a 'frozen state' with eyes and ears only fixed on the movie. So of course I started to test her more (yes, my cynical side again) she answer my questions when I was in the other room asking her at a low voice, too!! AMAZING I TELL YOU!

Oh, thank you Lord!

Sunday, July 12, 2009

Our journey continues

Yes, I have not posted in sometime. It is thundering and lightning but somehow it is comforting. I guess it is the closeness that I feel to God when the weather intensifies. Not because I am scared but His awesome power is so evident. Thank you Lord for taking care of our earth as you do.

Grace has continued to grow in her therapy. We got her blood test results back on July 3th. This is for food sensitivites or intolerances. If she scores a 3+ on anything we need to stay away from that and then the scale goes to 2+ (moderate), 1+ (low), then VL (very low) and 0 (no issues).

I was a bit shocked on a few of the results which reiterated the correct decision to get the test done. Grace scored a 3+ for the following:

Celery, Cucumber (pickles), String bean (yes, she is daughter, hee hee), Tomato (shocked me), Egg white and yolk (another shocker), Gluten ( I knew it), peanut (new revelation, like mine recently), Pinto bean (huh?!), Soy ( new revelation, like me, again), and Wheat (ditto).

So basically since she scored so high for eggs it is advised to cut out all dairy and so on. The report from Genova Diagnostics is wonderful. I am so thankful that we did this IgG Antibody Assessment.

I wish our healthcare system would take a more proactive approach to medicine and things of this nature. but once again it is not lucrative to be proactive! Ugh!!

So we just started the new elimination diet, mainly the GFCF diet (gluten free, caisen free). I am also keeping tomato and corn out of her food intake if at all possible.

She has been doing well with her supplements and vitamin. She loves the bread that I am making in our new bread machine. We just purchased a ice cream machine and I am so excited to get it in a couple of days to make ice cream that she can eat!

Her birthday is in four days, and I am going to try to make her cake. It will be so fun, I will be pouring all my love into this cake as I do making the bread.

She is getting better at the IM (interactive metronome), she lives her music, and is ok with her eyelights but we have to work at it. We are not doing the goggles yet. Basically I do not want to risk her opening her eyes and looking at the light and getting eye damage. I feel that we should wait until she is a bit older. Her therapists are ok with that.

Her gait has improved greatly, walking on her feet not toes for longer periods of time and with her knees bending appropriately.

Last night, and the day before, I felt as if the fog had lifted. It seemed as if she really understood what I was saying and comprehended it. You know 1+1=2. I know that we are going to hit a low as all the literature states. I just pray that it happens and ends before my surgery on the 11th of August.

Oh, thank you Lord, again. Thank you for the confidence to look to You when I have fear or doubt. Please help me to continue to seek out You and my husband for discernment for that is when I am truely at peace.

The message at church today centered all around approval. This was so great for me to hear. Thank you Lord. Below is the bible verse for the message.

Fear of man will prove to be a snare, but whoever trusts in the LORD is kept safe.
Proverbs 29:25

Good Night! Audra