Well, what a wonderful day! Grace Marie really liked Ms. Therese and vice versa. This is the FIRST time every that Grace has giggled, was relaxed and all around comfortable for a therapy (aka, lesson). Yes, it was in our home so that could of helped BUT she is never really relaxed and excited to do her PT exercises/stretches with us at home or anyone elsewhere!
Then the HUGE, INCREDIBLE breakthrough happened at swimming tonight. Toward the end of swimming Grace Marie announced to Ms. Donna and myself that she had a strong leg and pat patted her right leg!!! Then she started kicking her right leg better than I have ever EVER seen AND she was kicking her left leg too in perfect swimming kicks. Yes, this is a FIRST, so yes, of course I had tears of JOY, HAPPY HAPPY JOY JOY!!!
We will see Ms. Therese on Saturday evening and then we will see Ms. Ellen in a month. A little background of how blessed that we feel. Ms. Therese received most of her mentoring from Ms. Ellen and Anat. Ms. Ellen received her training from Moshe Feldenkrais and Anat. Therefore, we could not be in better hands.
Have a wonderful day and thank you so much for your continued encouragement, prayers and support!
Wednesday, April 21, 2010
Tuesday, April 20, 2010
Big day tomorrow!!!
Just the facts:
Have a 2nd opinion with a ped. neuro. in November, yes, this is the earliest apt. she is the expert in CP so we are more than thankful to wait.
In February of 2011, we have an apt. with a developmental pediatrician, who got into medicine with CP as his focus. Yes, this was the earliest apt. and as you can imagine the cancellation rate for him is less than 2%. We could see him earlier at his private practice, however, they do not take insurance and I cannot convince our insurance company to pay at this location due to the time difference. It would be just for the 1st visit $950.00 out-of-pocket. We so wish we could do it but we cannot.
We will not be seeing the ped. ortho. achilles release is not in her future! We will try other things first because that is a decision with a lot of permanent and 'domino effect' conditions for the rest of her life.
The great news, while I am holding my breath is that I found a new 'type' of therapy for Grace to do in the meantime. It is called the Feldenkrais Method. I have heard that this is by far the BEST therapy for CP patients. I am not going to try to explain because I know that I will not be able to do it justice. The man who created it Moshe Feldenkrais wrote several books and his title to one book, The Elusive Obvious (aka, Basic Feldenkrais) sums it up. It is so easy that it is hidden! This therapy is also used for sport injuries, etc.
Well, we are very excited because the first lesson is tomorrow! I am trying to contain my excitement but I am so happy that we are doing something. I just hope and pray that the Botox does not hinder any results that she can make early on. Every time I look at Grace Marie's calf, reality sets in. She has great calf muscles from the toe-walking but since that Botox there is not muscle definition at all.
Swimming is going great. She is having trouble kicking but that is to be expected. Hopefully, Feldenkrais will help with that too.
I would love to hear your thoughts and as always thank you for your prayers and all!!!
Have a 2nd opinion with a ped. neuro. in November, yes, this is the earliest apt. she is the expert in CP so we are more than thankful to wait.
In February of 2011, we have an apt. with a developmental pediatrician, who got into medicine with CP as his focus. Yes, this was the earliest apt. and as you can imagine the cancellation rate for him is less than 2%. We could see him earlier at his private practice, however, they do not take insurance and I cannot convince our insurance company to pay at this location due to the time difference. It would be just for the 1st visit $950.00 out-of-pocket. We so wish we could do it but we cannot.
We will not be seeing the ped. ortho. achilles release is not in her future! We will try other things first because that is a decision with a lot of permanent and 'domino effect' conditions for the rest of her life.
The great news, while I am holding my breath is that I found a new 'type' of therapy for Grace to do in the meantime. It is called the Feldenkrais Method. I have heard that this is by far the BEST therapy for CP patients. I am not going to try to explain because I know that I will not be able to do it justice. The man who created it Moshe Feldenkrais wrote several books and his title to one book, The Elusive Obvious (aka, Basic Feldenkrais) sums it up. It is so easy that it is hidden! This therapy is also used for sport injuries, etc.
Well, we are very excited because the first lesson is tomorrow! I am trying to contain my excitement but I am so happy that we are doing something. I just hope and pray that the Botox does not hinder any results that she can make early on. Every time I look at Grace Marie's calf, reality sets in. She has great calf muscles from the toe-walking but since that Botox there is not muscle definition at all.
Swimming is going great. She is having trouble kicking but that is to be expected. Hopefully, Feldenkrais will help with that too.
I would love to hear your thoughts and as always thank you for your prayers and all!!!
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