We met with the pediatric neurologist yesterday afternoon. His recommendation was an achilles release in conjunction with botox injections in the hamstring and achilles calf areas.
We are currently looking for a pediatric orthopedic surgeon, and other opinions on treatments too. We are looking nationally too. I keep going back to the fact that more testing needs to be completed to get us a better insight into her particular situation. Like a gait analysis, nerve or muscle functions, etc. Also, I would like more concentration to be placed on her BRAIN and not the leg so much. Her white matter is still pliable so lets work with that, sorry for the vent!!
Chris and I am head down and knowing that time is of the essence in regard to her contracture. However, we are going to review all areas of treatments and combinations that best fit her. God made us all in His image and with a twist of uniqueness that makes us us, like a snowflake!
More info. to come....
