Yes, that is what I try to remember when I have a pity party. God knows what we can do even if we think we cannot! So I try to get caught up each and every minute and then sometimes say, save it for another day!
I must admit that I have not posted much as of late because I have been in my angry/anxiety stages. Just wished that things would have been caught sooner. If I was more persistent and trusted of my gut! She had so many signs and put together it was not reflux, etc. What a lesson learned. This is why I am researching all methods of brain injury info. Knowledge is power and one has to get all areas of the subject to learn more and determine the best course of treatment. It will not come from anyone else but us parents. Remember this lesson!!! My latest research books are
What to do about your brain-injured child by Glenn Doman
Healthy Brains, Healthy Children by Dr. Coralee Thompson and Dr. Phillip Maffetone
I so hope that I can make a significant dent into these books over the next two weeks. This is a hard journey but so worth it. For instance last night Grace had a memory from about two years ago. This has never happened!!! Thank you God. So I write this so when I do not want to give/struggle with her for her supplements, therapies, stretches, etc. I know it works and it is so important. How else could I live with myself If I cannot look her in the eye that day (and it will happen) when she says why me Mommy and how it happened because of my genetic blood disorder!!! I can be confident in letting her know that I did everything that could be done. That to me is the trust and unconditional love that each of us deserve and desire from our parents! If you are reading this and you did not get it please feel comforted that you can have it right now just close your eyes and imagine our Heavenly Father scooping your up into his Awesome Arms and holding you tight!!
So my anxiety comes from not being able to read enough fast enough, research enough into schools treatments and of course do not forget the endless laundry, house cleaning and cooking, etc.
Grace is AMAZING! Every time that I write that I remember how her name came to us. We picked the name Grace for two different reasons. First, the song Power Windows by Billy Falcon and second the book that changed my life and banished my false guilt, Grace Walk by Steve McVey.
Grace had her third cast put on last Thursday. She only increased flexion by about 3 or 5 degrees so we will probably have a fourth cast. She goes to pick up her self-designed AFO (articulating ankle foot orthodotic) on Wednesday. Yes, she designed it with butterflies with purple background and pink straps! Then a couple of hours after that she gets the new cast put on.
I go to see Dr. Rabin to get my results on my thyroid panel/hormones on Thursday, yes Christmas Eve. We are hoping this will give us more information which is power! Then we are hoping to go ride the Pink Pig down at Lenox. Yes, we are finally going to do the Atlanta Christmas tradition. Then Christmas eve evening at my Mom's with my wonderful sisters, husband and nephew coming into town.
Merry Christmas!
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