Wow, I haven't updated since December 22nd! I will try to be brief, HA!
Grace had her 4th cast put on Christmas Eve.
All indications from many of us was that she was losing her flexion and getting tight again. The last casting only gave her 2 degrees of flexion. I am not sure if Grace is just a 'tough' girl and does not want to mention the pain or she has some type of sensory issues. She was quiet but having fun all day. Once she went to sleep. She woke up every hour crying and screaming in pain. Motrin, biofreeze, TLC, nothing helped. So at 5 am Christmas morning we took the cast off. Her foot was red and sore and she started to gain relief after more pain reliever and it being off.
We went on the following Wednesday to see the therapist and she had gained on flexion and was actually loosing a bit of it. So we decided to wait and see with the doc. said.
Now Grace is set up to have more Botox (hopefully insurance will approve) on March 3th this time she will more than likely get 4 shots and a bit more in each shot.
Grace had a meltdown about two weeks ago (yes, I let her have some wheat and gluten the day before) over nothing and started to itch her head like crazy. So I started to look at her head to check it out and she was broken out in hives all over her face. This has never happened, good to know!
She starts swimming lessons next Wednesday, the girls are so excited since they will have a semi-private lesson together. This should help Grace with her muscles, too.
Grace is in the process of being evaluated by the school system. We just need more help and more resources that we hope they can assist us with.
Happy New Year!
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