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Thank you for visiting our blog. Please read my daughter, Grace Marie's, journey to her full potential.


Wednesday, November 24, 2010

Happy Thanksgiving!

Yes, the Edwards have many things/people to be thankful for. Thank you to so many of our friends/family that have cried, helped with the girls, went to doc apt's, and most importantly prayed for/with us. What an amazing year that it has been, I am so thankful that we are another step closer to ensuring that Grace reaches her full potential.

It is such an incredible feeling to go to sleep with the peace that I have done everything that can/or should be done for a child, especially me being her mommy! I could not be anymore proud of Grace Marie, as Grace would tell you, Mommy is SO proud of me!!

I have so enjoyed this week with the girls. It was great to awake to each others voices and not the alarm clock. I cannot believe it is Wednesday, already.

Update


We received the results from the neuropsychologist last Thursday. Basically, her testing showed the same results as previous testing with an addition, that was not tested before. Her QEEG came back with the possibility that she could or has experience petit mal, seizures. Petit mals are the mildest of all seizures. Characterized as a starring spell that can last up to 15 seconds.

The encouraging news is that these seizures will not result in any further brain damage, and this finding is not a shock to us, we have know that most-often with CP it is a package deal of several other issues like seizures, autism, ADHD and so on.

So with that being said she also was diagnosed again (initial dx. was in spring of 2009) of having inattentive ADHD. Once again not a surprise but comforting to have the proof in writing to proceed with all necessary tools to help her reach that full potential.

We have had to get very strict on her diet, again, and the supplements and vitamins, too. But we are so thankful that she is not having to take any medications for seizures, etc.

Well, I have made my gluten/wheat free pie crusts, one for the chocolate/pecan pie (rice syrup in lieu of corn syrup) and ginger cookie pie crust for the pumpkin pie. The crusts taste great, and the pumpkin filling, too. I am a little concerned about the rice syrup, I'll update all at a later date on that! LOL

Tomorrow, will be the wheat/gluten free slow-cooker stuffing, and so on. Chris is handling the turkey, thank you, Jesus.

Happy Thanksgiving, we hope it is truly a blessed and wonderful day for all!!

1 comment:

  1. Hello Edwards Family:

    Great news on Grace! Just wanted to say Happy Thanksgiving! Your mom is here, I put her to work last night as well as the other girls on Thanksgiving fixings. I'm sure your pies will be delicious too! It really doesn't matter, except for all the work you put into them, your with your wonderful family, can't beat that! They love no matter what! Love you Audra, big hugs and kisses to the girls and Chris. Love, Liz

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